Since 2009, we annually publish the Brazilian Cystic Fibrosis Registry (REBRAFC), the most complete overview of the disease in Brazil. The REBRAFC consists of data on the presence and demographic distribution of patients with cystic fibrosis in Brazil, diagnostic methods, and management and treatment of the disease.
The REBRAFC is the most important documentation of cystic fibrosis in Brazil, as it allows comparing advances over the years and identifying points for improvement related to the current scenario and patient outcomes – covering clinical, microbiological, and functional aspects.
An accurate assessment of regional data also allows us to draw the attention of public and private health professionals caring for patients with cystic fibrosis to the challenges and achievements in the field, with a focus on the creation of public policies that improve the scenario in Brazil.
Since the REBRAFC is available in both Portuguese and English languages, it is a key documentation for including Brazilian data in global epidemiological studies on cystic fibrosis, in addition to allowing scientific and academic interaction between Brazilian and international professionals.
To find all REBRAFC issues, click here.